My journey with Endometriosis began at 15 when my periods were so unbearable and monthly of staying home suffering with severe cramping and heavy periods. I was diagnosed finally after an emergency operation at the age of 18\
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the pain became so intense and persistent that I became severely fatigued and sleep-deprived. It sometimes felt like my own body was slowly trying to shut down and felt that the whole world was against me. As the pain worsens as the weeks goes by, it came to the point where I couldn't control the pain with just over the counter pain medications\
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Endometriosis has caused my life to basically just become hell on top of being trans. I feel that being trans was a bigger hinderance than the pain and it just felt like another anomaly in my body to set me back that came with being different. I have not yet decided to go to collage/university due to a worry over my body not being about to handle the pain of endometriosis as well as wearing a binder for hours on end.\
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I dealt with these worsening symptoms through high school and my undergrad. I started to have severe bleeding and cramps that made me miss school and work. When I started my master’s, I started to have pain with sex and with exercise. I would go for a five minute bike ride and vomit from the pain. I finally started doing my own research online and found out about endometriosis. It took a while, but I found some doctors who took me seriously\
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On going chronic pain in my lower abdomen, my bowels, my back and down my legs. Fatigue - brain fog- memory issues. Irregular bleeding between periods Unpredictable crippling painful periods. Socially suffering - taking a toll on my family and support people. Unable to function enough to work.\
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I was trying to get rid of my baby weight 10 years ago working out. I was doing my 75th sit up and my groin was in so much pain. I went to the doctor and was told it’s basically menstrual pain. I later moved to Prince George and a doctor told me he won’t know if it’s cancer or endometriosis till he gets in there. I was told after the operation that I could work out in 6 weeks. 7 weeks later I go back and told him I still had trouble with movement. He then told me half my muscle in my right quadrant was scraped out. It would be 6 months till I could work out. \
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I was in nursing school in a pandemic when the symptoms started. My pain felt like a sharp stabbing pain and it was located on my right side. This pain usually happened prior to my menstrual periods but eventually then became an ongoing issue. The other symptoms I had was constipation, chronic fatigue, brain fog, headaches, migraines, night sweats, chills, legs aching, and malaise. Thus, this debilitating pain ended up impacting my quality of life and affected my education that I worked hard for to get in.\
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This disease is like no other; Prior to excision surgery, I daily felt like I was being impaled by a tree branch in my abdomen coupled with feeling like my back was being sawed in half. I also had extreme fatigue, “foggy brain”, migraines, unpredictable cycles, up and down moods, and digestive challenges that were all sourced back to being from endo.\
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I have anxiety because I'm always anticipating pain. I'm afraid to be in public alone when a flare up hits. Sometimes something as simple as urinating gives me anxiety because pain usually follows. I've suffered from depression on and off because of my limitations. Sometimes I feel like a burden to my husband. I get tired of disappointing everyone around me when I have to cancel plans or refuse to make them in the first place. I barely leave my house anymore. \
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