Migraines, nausea, chronic lower back pain.
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I originally thought my Appendix ruptured when I first was diagnosed with it. With my flares, my symptoms range from Sharp stabbing pain that makes me unable to stand, often combined with a migraine and nausea. Then there’s the one, dull throbbing pain for about a week. Followed by nausea, emotional ups and downs , then hot flashes. And the last one.. is basically the one that has me in hospital- Sharp knife like pain,
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My first symptom was a constant pain on the right side (3 times mistaken by appendicitis). Then, it would be the infamous endo belly, the pressure of a balloon growing and pressing my insides. Pain while peeing and pooping. After that, it only got worse. I spent months laying on the ground, 4 days per month. Missing school, because I couldn't walk properly, my entire pelvis hurt, and I would get waves of cramping that felt like contractions..
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After having suffered painful periods for years, they changed after having children. More pain, more bleeding, heavy clotting, and dizziness. Sometimes I missed periods. Sometimes they happened every 2 weeks, sometimes there was spotting in between.
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I have been going to the Doctor to treat painful periods from age 12. Put on birth control age 13 to 19. 19-27 seeking help from local GP. Wouldn’t refer me to a gynecologist saying pain could be in my head and that I had IBS
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I got my first period at 9 years old, first felt pain at 14, then extreme pain at 15/16. My family doctor didn't care, kept giving me medications for pain (I didn't take them, just stuck with regular over the counter acetaminophen). I gave up trying, thinking it was all in my head until I was about 18.
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I started menstruating at 11yrs old. By 13, I knew my long list of extreme symptoms couldn’t possibly be “normal”. I went to doctors, gynecologist, health clinics and spoke to nurses for almost 7 years. Each one telling me my experience was “normal”, “this is what a period is like”, “it’s all in your head just get over it”.
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I was lucky to have a very normal and painless period when I first got it. It wasn’t until I was 21 I started having cramps that got worse as I got older. I thought it was normal with my body changing into my twenties. By the time I was 23 I would have cramps that would leave me bed ridden until my period ended.
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Currently, I am on year 8 of my endometriosis journey and the disease has progressed onto my nerves. I was diagnosed (finally) in 2020 and it has just gotten worse since. I am on a nerve medication to help control the fire that burns in my pelvic region and sends fire bolts down my legs when the meds aren’t working.
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