My first endometriosis flare occurred when I was 34, about 2 years after coming off oral contraceptives. My period came and along with it was a stabbing pain on the right side of my stomach. I though I had appendicitis. I was super nauseous\
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The day before I get my period is the worst day. Suddenly, I’ll get the most intense pain in my pelvic area. It’s so bad that I physically can’t move without wanting to scream. I’ll take Naproxen and go into the shower and allow the heat to hit where the pain is intense. It will usually take 30-45 minutes for me sitting there until I feel like I can move again.\
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Endometriosis is invisible. I'm pretty sure if someone looked at me, they would not be able to tell I am in pain. I hide it well because I don't have a choice. I need to go to school and work, I need to do things around the house, and I can't just lie in a ball on the floor and cry all day. It is daily/almost daily chronic pain and it is exhausting..\
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Having endometriosis, for me, was like permanently having the stomach flu. The pain was so bad, it was like a knife twisting into my pelvis and by extension, my intestines, forcing me to retreat to the bathroom\
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Endometriosis has affected my day-to-day life first starting when I was a teenager and missing school a lot because of pain and not being able to move or get out of bed, to my young adult life where it started affecting my ability to hold jobs or show up to work, I did have a year or two where it wasn't affecting my day to day as much as before and I was able to finish a post-secondary education but even by the end of the course I found myself calling in and not being able to show up and give a 100%.\
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It took decades for me to find a doctor that would listen to me about the negative impacts my periods were having on my life. I have only ever been offered various pain prescriptions. Hospital visits offered the most (albeit temporary) relief through a combination of morphine and Gravol IV drips.\
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I cannot be spontaneous and have missed many social gatherings. My illness makes me unreliable at times. As someone who is un-partnered, dating has been difficult due to ablelist mentalities & my inability to predict my symptoms nor timeline of treatment.\
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My journey with Endometriosis began at 15 when my periods were so unbearable and monthly of staying home suffering with severe cramping and heavy periods. I was diagnosed finally after an emergency operation at the age of 18\
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the pain became so intense and persistent that I became severely fatigued and sleep-deprived. It sometimes felt like my own body was slowly trying to shut down and felt that the whole world was against me. As the pain worsens as the weeks goes by, it came to the point where I couldn't control the pain with just over the counter pain medications\
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