On my worst pain days I can't go to work. This is about once a month. I always hope it falls on a weekend so I don't have to call in sick. I can't run or workout several days a month for the pain. I feel like I can't participate in my family life on the bad days. We've cancelled outings that landed on my bad pain days. 
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I have lost relationships and jobs because people didn't or don't believe how deliberating and crippling this illness does to you, I was mistreated and disrespected a lot. I also developed fibromyalgia after my surgery and this is year 2 of me still learning to cope with that illness. 
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If I sit too long it feels as though my ovaries are going to explode, I struggle with shortness of breath, chest pain, nerve pain in my legs amongst other symptoms. I have been waiting for 18 months to see a pain management specialist although I feel it is not necessary. I've lived in pain 17 years and although it slows me down and changes a lot of daily activities I've learnt to live with it. 
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The amount of work and school days I missed because of endometriosis is unacceptable. And the worst of it all is that people don’t know what endometriosis is, and therefore they don’t believe you or your symptoms. Most of the time, you get judged because people think you are simply exaggerating your period symptoms.  
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I am fortunate that I am still able to work with endometriosis. I have had to adapt my exercise regime as running makes my abdomen hurt. Two to three days a month I do stay in bed in pain, which affects my social life. 
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In my 40s I can finally say I feel better after being in perimenopause! But the most negative thing is that I was never been able to have children.... sadly diagnosed too late in life. 
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Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn’t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room visits I finally found a doctor who thought they knew what my condition really was. Endometriosis. 
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It took 17 years for me to get diagnosed with endometriosis. Lots of adhesions - I lost my left fallopian tube. Fighting with infertility. This is a tough and emotional journey. 
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Many of the pharmaceutical remedies that are used in the treatment of endometriosis are not available to me as I'm a hormone positive breast cancer survivor. We've been treating my endometriosis with pain medication.
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