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Endometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion...

I have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have...

Plusieurs annulation de sorties entres amis, de fête familiale et de journées de travail manqué dû au douleurs et la fatigue. La culpabilité et l'injustice sont des sentiments fréquemment ressentis. Moins d'énergie dans une journée qu'une autres personnes, on se fatigue plus rapidement....

Comme je l’ai dit, il faut garder espoir. Rien n’est certain, mais rien n’est incertain également avec cette maladie. Il faut vivre une journée à la fois, ne faites pas trop de projet à long terme, mais plutôt à court terme....

Health care for endometriosis needs to be more common in smaller towns or cities, as in more specialists need  to help more patients than just the one or 2 specialists that are available and you have to wait for 6 months to a year to...

When I had pain, it affected me particularly as a teenager. I missed school a couple of days every month because I couldn't sit upright and would bleed heavily, causing immense discomfort. My family, my doctor, everyone told me this was normal....

My life went from amazing to not being able to do anything once again. I needed to get a lawyer to fight for me for insurance to keep on paying my long term disability. They don’t understand this disease. Finally, I won my case....

J'ai manqué tous les mois le travail et l'école avant de savoir ce qui m'arrivait. Je me suis fait reproché mes absences. J'ai eu beaucoup de difficulté à expliqué à mes employeurs ou professeurs que je n'étais pas malade, juste...

I finally made it to an endo specialist and I feel lucky to be here - awaiting some treatment but I can tell you - my anger and fear are still there. I worry about a system that may deny me help again is this...

On my worst pain days I can't go to work. This is about once a month. I always hope it falls on a weekend so I don't have to call in sick. I can't run or workout several days a month for the pain. I...

I have lost relationships and jobs because people didn't or don't believe how deliberating and crippling this illness does to you, I was mistreated and disrespected a lot. I also developed fibromyalgia after my surgery and this is year 2 of me still learning to...

Un gynécologue m’a dit qu’il soupçonnait de l’endométriose mais pour être certain je devais passé des test, lavement baryté, une échographie pelvienne, une coloscopie et une laparoscopie verdict endométriose avec transfert dans le gros colon. J’avais 21 ans. ...