{"id":1136,"date":"2021-01-17T10:19:23","date_gmt":"2021-01-17T18:19:23","guid":{"rendered":"https:\/\/endoact.ca\/anonymous-5\/"},"modified":"2021-03-09T05:06:38","modified_gmt":"2021-03-09T13:06:38","slug":"anonymous-5","status":"publish","type":"post","link":"https:\/\/endoact.ca\/fr\/anonymous-5\/","title":{"rendered":"Anonymous"},"content":{"rendered":"
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What are your endometriosis symptoms like?<\/strong> Spontaneous bleeding, fatigue, debilitating pelvic pain that often turn into pain radiating down my back and legs, nausea.\u00a0<\/span><\/p>\n<\/div>\n

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What was your journey to diagnosis like?<\/strong> I am not currently diagnosed, but I have been given a provisional diagnosis. Many doctors brushed off my pain, and I was referred to a gynaecologist. The gynaecologist has prescribed endometriosis medication that costs about $70 a month, but refuses to do testing until I struggle with infertility. I am only 23 and I have no intentions of having children. It\u2019s not right that I have to have kids to receive a proper diagnosis.<\/p>\n<\/div>\n

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What was your experience with treatment for endometriosis been?<\/strong> My medication for endometriosis is not working, it has increased my bleeding, and I often have 2-3 periods of bleeding a month. I have been on this medication for 4 months now, but my doctor says I have to try it for longer until they will switch me. No medications for pain have worked in managing my symptoms.<\/p>\n<\/div>\n

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How does endometriosis affect your day-to-day life?<\/strong> I can\u2019t work full-time, and I spend lots of time in bed with pain flares that cannot be controlled by pain medication. I used to run 6k a day, but I cannot run anymore due to my pain increasing during intense exercise. Last time I tried to go for a run, I was in so much pain halfway through that I was unable to move and almost needed to call emergency services.<\/p>\n<\/div>\n

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How does endometriosis affect your emotional well-being?<\/strong> I had mental health problems before, but my depression and anxiety have increased through struggling with pain. I have anxiety about taking a medication for endometriosis when I have not gotten proper testing, and I often feel depressed because there is nothing that seems to work to give me my life back.<\/p>\n<\/div>\n

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How has endometriosis shaped turning points in your life up until now and looking toward the future?<\/strong> I am 23 and would like to go back to school and get a university degree, I keep postponing this due to my health. It has been 10 years since I first had symptoms and I still have not made progress, meanwhile my life is on hold.<\/p>\n<\/div>\n

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How have you found hope and support in your endometriosis journey?<\/strong> I am in a Facebook group for folks struggling with a diagnosis or symptoms of endometriosis. It is helpful to hear from other people going through it, especially when we are unable to get proper information from healthcare providers.<\/p>\n<\/div>\n

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What do you think healthcare for endometriosis in Canada should look like?<\/strong> Access to proper testing and information. The best way to diagnosis endometriosis is through laparoscopy and the wait list for the treatment is 2+ years, and that\u2019s if you get a referral, most folks suffering from endometriosis are refused testing. There needs to be more investment made into making sure testing is accessible.<\/p>\n<\/div>\n

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What do you think it is important for people to know about the experience of having endometriosis in Canada?<\/strong> Endometriosis is not just painful periods, it is chronic pain that can be debilitating, and other intense symptoms. It is way more serious than the way it is described.<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

I am 23 and would like to go back to school and get a university degree, I keep postponing this due to my health. It has been 10 years since I first had symptoms and I still have not made progress, meanwhile my life is on hold.\u00a0<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[44],"tags":[46,38],"class_list":["post-1136","post","type-post","status-publish","format-standard","hentry","category-temoignages","tag-anglais","tag-ontario-fr"],"yoast_head":"\nAnonymous - EndoAct<\/title>\n<meta name=\"description\" content=\"I am 23 and would like to go back to school and get a university degree, I keep postponing this due to my health. 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