{"id":1252,"date":"2021-01-25T17:50:17","date_gmt":"2021-01-26T01:50:17","guid":{"rendered":"https:\/\/endoact.ca\/?p=1252"},"modified":"2021-03-09T04:49:17","modified_gmt":"2021-03-09T12:49:17","slug":"anonymous-7","status":"publish","type":"post","link":"https:\/\/endoact.ca\/fr\/anonymous-7\/","title":{"rendered":"Anonymous"},"content":{"rendered":"

What are your endometriosis symptoms like?<\/span><\/strong> Constant fatigue and chronic everyday pain. Societal pressure to suck it up and not talk about \/complain. Pain so sharp you can barely breathe.\u00a0<\/span><\/span><\/p>\n

What was your journey to diagnosis like?<\/span><\/strong> Since I first got my period they were heavy and long and painful. As I grew up, I experienced several ovarian cysts. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn\u2019t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room visits I finally found a doctor who thought they knew what my condition really was. Endometriosis. Over the next year I tried strong hormones and almost every painkiller, muscle relaxants and antidepressants they pushed at me. After the pain became too much to push through a day, once I was no longer able to work or even function some days I was able to have excision surgery. Recovery was tough. 8 weeks. I had urinary retention, bladder and bowel irritation, extreme stomach swelling and distension. Despite having visible scars on my ovaries, I was able to get pregnant. It ended in miscarriage and like so many with endometriosis, I was told I might never conceive. Fast forward 3 years and I have a toddler, but also severe symptoms returning. I\u2019m experiencing pain like never before. It brings me to my knees. My stomach can swell from a small bump to looking like I\u2019m 9 months along in mere hours. I\u2019m nauseous every minute of the day. I can\u2019t even remember the last time I wasn\u2019t woken up in the middle of the night with pain. Once again, my endometriosis is taking over my life. My most recent ultrasound has shown that my left ovary has fused with my abdominal wall. My cervix is crumpled into itself, parts of my bowel have attached to my uterus. Add in COVID and I\u2019m told it could be 8-12 months before I\u2019m even able to see a specialist, before I\u2019m even able to be considered for surgery. I\u2019m 37 and for the last 15 years I\u2019ve felt like a burden to my friends, family and employer.\u00a0<\/span><\/p>\n

What was your experience with treatment for endometriosis been?<\/span><\/strong> The sheer lack of knowledge for a disease that affects sooooo many of the population is unbelievable. Once we are finally taken seriously, and we\u2019re lucky enough to find someone who\u2019s able to help, we’re given expensive, barely researched medication. The hormones are no joke. I\u2019ve woken up soaked in night sweats, my mood can be a dollar later, I\u2019ve started losing some hair, I\u2019ve gained weight. As a former clinical research coordinator, the first thing I do following a doctor\u2019s visit is to check the literature. There\u2019s barely anything. Even fewer randomized clinical trials, peer-reviewed articles, anything really<\/span><\/p>\n

How does endometriosis affect your day-to-day life?<\/span><\/strong> I\u2019m tired. I\u2019m so so tired. I have no social life. I\u2019m constantly having to cancel activities. I feel the need to lie\/hide my condition from those who don\u2019t know me well. Exercise makes me dizzy and weak. The hormones make me overeat and slows my metabolism. I take time off work. This disease has taken my life hostage.\u00a0<\/span><\/p>\n

How does endometriosis affect your emotional well-being?<\/span><\/strong> I\u2019m always tired. I\u2019ve had countless doctors simply tell me that I\u2019m stressed and overreacting. Currently, practicing physicians continue to tell me that if I just get pregnant I will be cured. The chronic pain and fatigue combined with a lack of support from medical professionals worsened my anxiety and I\u2019ve gone through severely depressed periods. Sex is painful. I\u2019m constantly nauseous and tired. I have no drive.\u00a0<\/span><\/p>\n

What do you think healthcare for endometriosis in Canada should look like?<\/span><\/strong> Systemic change is needed. Endometriosis needs to be given more attention in medical school and nursing. We need to fight for our voices to be heard. Clinical trials are needed. Research is needed. Card and treatment options need to be more readily available. Diagnostic tools need to be developed. Above all, we have to speak out and stop avoiding talk of gross female problems. Of course, as per most areas of health care, specialists are needed and wait times desperately need to be shortened.\u00a0<\/span><\/p>\n

What do you think it is important for people to know about the experience of having endometriosis in Canada?<\/span><\/strong> It exists. It\u2019s a huge medical issue which a huge portion of the population suffers from. It\u2019s real and it\u2019s exhausting.\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn\u2019t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room visits I finally found a doctor who thought they knew what my condition really was. Endometriosis.<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[44],"tags":[46,38],"class_list":["post-1252","post","type-post","status-publish","format-standard","hentry","category-temoignages","tag-anglais","tag-ontario-fr"],"yoast_head":"\nAnonymous - EndoAct<\/title>\n<meta name=\"description\" content=\"Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn\u2019t real. 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