{"id":1597,"date":"2021-05-04T13:05:53","date_gmt":"2021-05-04T20:05:53","guid":{"rendered":"https:\/\/endoact.ca\/?p=1597"},"modified":"2021-05-04T13:05:53","modified_gmt":"2021-05-04T20:05:53","slug":"anonymous-13","status":"publish","type":"post","link":"https:\/\/endoact.ca\/fr\/anonymous-13\/","title":{"rendered":"Anonymous"},"content":{"rendered":"

What are your endometriosis symptoms like? <\/span><\/strong>At first just pain with periods. But I now have some kind of pain daily. And little nodules all over my abdomen. At first my leg would only go numb and have burning sensations during my period. It\u2019s now numb always and burns during my period. I have troubles going to the bathroom during my period. Both ways. If I try to pee it\u2019s painful and takes a long time. If it\u2019s the other way it\u2019s very painful and sometimes I see stars and throw up. I have all kinds of digestive issues. I\u2019ve passed out trying to work with this pain. Companies aren\u2019t kind if you take time off for your period. Ambulances are expensive when people call them every time you pass out. I\u2019ve been fired so many times for sick time. I got my period at 8. At 10 my dad took me to the emergency room. After a bunch of tests I was admitted to psychiatric care. I\u2019m still afraid to tell doctors when I\u2019m in pain.\u00a0<\/span><\/p>\n

What was your journey to diagnosis like? <\/span><\/strong>It took 25 years (I know I was in pain this long as I was 10 when I was admired for psychosomatic pain with my periods). I\u2019ve been through countless gynecologists who often write off my pain and bleeding as psychological. I\u2019ve had 2 surgeries and 2 procedures that didn\u2019t do a darned thing to help. Or they diagnose me as \u201cheavy bleeding, heavy cramps.\u201d I\u2019ve had trouble getting pregnant too, and just figured I couldn\u2019t until I saw an excision doctor in Calgary. The doctor who sent me to her said she didn\u2019t think I had endo until I asked about my numb leg. Then she said she\u2019d seen a person once with endo whose leg did the same and referred me. She tried me on Lupron until I could get in. At first, it worked well and seemed like a miracle. But then it stopped working and I had my period all the time. With so many side effects it didn\u2019t seem worth it. My spouse came to the appointment with the excision doctor. He pointed to the poster on the wall with all the symptoms and said \u201cshe has all these, but the other doctors said it wasn\u2019t endo… how come they don\u2019t know?\u201d I\u2019ve been waiting 3 years since seeing the excision doctor who says I likely have endo. And I\u2019m waiting now for surgery. I\u2019m so sick all the time. But I\u2019m supposed to get it sometime in early 2020. (I\u2019ve been waiting 3 years). With COVID I hope it\u2019s not too much longer. I really want a baby and the excision doctor says an excision might mean I can get pregnant. I\u2019m so close to 40 and I\u2019m worried about the wait. I mean it\u2019s a pandemic so I have to wait it out. Being on the list is hope. My doctor says with the nerve surgery he\u2019s doing with my excision he can\u2019t get rid of all the pain. But can turn it down. That sounds like a pretty good deal.\u00a0<\/span><\/p>\n

What has your experience with treatment for endometriosis been?<\/span><\/strong> I\u2019ve tried a lot. The local pain clinic has been amazing. I\u2019m in regularly for kinesiology and pelvic physiotherapy. I\u2019ve been on Lupron, which for me is awful. When I was younger I tired every birth control under the sun. Progesterone only ones don\u2019t work well for me. But keep trying until you get one that works. I worked in the US for an employer that could fire us if we took birth control while not married (premarital sex). Without an endo diagnosis, I couldn\u2019t take it. I got sick and after 3 years lost my dream job. I was diagnosed with gallstones and came to Canada to find out I had none. Birth control makes all the difference for me. Endo massage has been huge. My massage therapist works on all the nodules she finds in my abdomen. And in combo with the pelvic physio, I got my sex life back. I\u2019m hoping to have an excision soon and see if it helps my pain. I\u2019d love it if going to the bathroom was easier.\u00a0<\/span><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

I really want a baby and the excision doctor says an excision might mean I can get pregnant. I\u2019m so close to 40 and I\u2019m worried about the wait. I mean it\u2019s a pandemic so I have to wait it out, but being on the list is hope.<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[44],"tags":[31,46],"class_list":["post-1597","post","type-post","status-publish","format-standard","hentry","category-temoignages","tag-alberta-fr","tag-anglais"],"yoast_head":"\nAnonymous - EndoAct<\/title>\n<meta name=\"description\" content=\"I really want a baby and the excision doctor says an excision might mean I can get pregnant. I\u2019m so close to 40 and I\u2019m worried about the wait. 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