What are your endometriosis symptoms like?\u00a0<\/b><\/p>\n
Like having two meat hooks in my hips that are being pulled apart, I imagine it as an invisible Saw movie trap. It\u2019s paralyzingly awful.<\/p>\n
What was your journey to diagnosis like?<\/b>\u00a0<\/span><\/p>\n It took 7 years from the first time I complained of being in abnormal pain compared to my peers. I insisted on laparoscopy because not knowing why I was in pain felt worse, emotionally, than the pain. I was lucky to get diagnosed when I asked, if I had known about endometriosis sooner then I could have started to manage it sooner. About 6 doctors total for one to say \u201cendometriosis.\u201d<\/p>\n What has your experience with treatment for endometriosis been?<\/b>\u00a0<\/span><\/p>\n Cutting gluten from my diet has been amazing for me. It\u2019s just a little less inflammation but it helps a lot. Ablation surgery gave some relief for about 6 months. A TENS machine isn\u2019t too bad either. Mostly, prescription painkillers, heat, and CBD oil is the best. I\u2019m not into taking hormonal birth control because of side effects.<\/p>\n How does endometriosis affect your day-to-day life?<\/b>\u00a0<\/span><\/p>\n My mental health has taken the biggest hit from endometriosis- it feels like pain with no gain- I didn\u2019t do anything to deserve this kind of physical pain. I\u2019ve always wanted a baby and endometriosis feels like some nasty shadow over my life now. Missing classes and work feels so shameful because people cannot understand a pain they\u2019ve never felt.<\/p>\n How does endometriosis affect your emotional well-being?<\/b>\u00a0<\/span><\/p>\n I think endometriosis has a big part to play in my mental illness, it is unfair that I got stuck with it. It\u2019s incurable. It can make the future looks really grim knowing endometriosis is coming with you, no matter what you do.<\/p>\n How has endometriosis shaped turning points in your life up until now and looking toward the future?<\/b>\u00a0<\/span><\/p>\n I think it\u2019s been a part of the breakdown of some relationships- just because people can\u2019t fathom it as an experience.<\/p>\n How have you found hope and support in your endometriosis journey?<\/b>\u00a0<\/span><\/p>\n Being diagnosed was a big milestone for me. It\u2019s a like a key to unlocking a community of support, advice, and resources that just aren\u2019t there for primary dysmenorrhea. I\u2019m grateful for where I\u2019m at with it.<\/p>\n What do you think healthcare for endometriosis in Canada should look like?<\/b>\u00a0<\/span><\/p>\n More experts, this disease is so common and yet the understanding of the basic microbiology\/cellular structures of it is misunderstood. Access to endometriosis specific healthcare and treatments for a CURE. Birth control is NOT A CURE and can be very bad for you. Stop dismissing teenagers. Find a way to diagnose without surgery.<\/p>\n What do you think it is important for people to know about the experience of having endometriosis in Canada?<\/b>\u00a0<\/span><\/p>\n It\u2019s a whole body disease. It affects my eating, my sleep, my productivity, my sitting position, everything.<\/p>\n <\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" My mental health has taken the biggest hit from endometriosis- it feels like pain with no gain- I didn\u2019t do anything to deserve this kind of physical pain. I\u2019ve always wanted a baby and endometriosis feels like some nasty shadow over my life now. Missing classes and work feels so shameful because people cannot understand a pain they\u2019ve never felt.<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[44],"tags":[31,46],"class_list":["post-2077","post","type-post","status-publish","format-standard","hentry","category-temoignages","tag-alberta-fr","tag-anglais"],"yoast_head":"\n