{"id":2721,"date":"2022-04-03T17:35:25","date_gmt":"2022-04-04T00:35:25","guid":{"rendered":"https:\/\/endoact.ca\/?p=2721"},"modified":"2022-04-03T17:35:25","modified_gmt":"2022-04-04T00:35:25","slug":"joana-4","status":"publish","type":"post","link":"https:\/\/endoact.ca\/fr\/joana-4\/","title":{"rendered":"Joana"},"content":{"rendered":"

What are your endometriosis symptoms like?\u00a0<\/b><\/p>\n

I have heavy bleeding that can go up to 10 days, there are months where I have my period twice in the month. I feel exhausted, I have sharp knife- like pain in my abdomen and pelvic area. I also become bloated and look like I am 6 months pregnant.<\/p>\n

What was your journey to diagnosis like?<\/b>\u00a0<\/span><\/p>\n

My name is Joana, I live in Regina, since 2012. This is my story about Endo, Adeno and Fibroids. I always used to have sharp pain since I can remember having my periods. I used to feel dizzy and fainted every month when I had my menstruation. I thought it was normal, this is what I was told when I was younger in my country of origin-Mauritius. In 2015, after having my first child, I started to have abdominal pain, back pain, leg pain and I was diagnosed with IBS and Fibromyalgia. I changed my diet, exercise everyday and I was also on several medications for Fibromyalgia for nearly 3 years and the medications would do nothing except from making me miserable, suicidal and gain weight.<\/p>\n

In December 2016, I had my little girl and my pregnancy was very difficult, I had early labor and was put on steroid injection. Fortunately, I had her at 37 weeks. But after my second pregnancy, the pain was unbearable and I had blood in my stool. I went to see my doctor again and he said it was IBD after sending my stool for testing. I went to the ER many many times, I have doctors telling me that I was clearly healthy after doing the basic blood panel test and that I should just go and see my family doctor; I have doctor also telling me if I was under stress as if it was in my head. At this point, I decided to contact the Women’s Health Clinic to get a referral to a gynecologists’. I waited several months to see one and after several ultrasounds both before and after my menstruation and ovulation, she told me she suspect I have Adenomyosis and Endo as well as they saw some cysts and Fibroids, she told me the only treatment for Adenomyosis is a hysterectomy and she can put a Nuvaring (Mirena) to help with the pain and will send a referral for me to see a specialist.<\/p>\n

I waited nearly 14 months to see a surgeon and at our first appointment, after talking about my symptoms and ultrasounds, he said the best course of action is an hysterectomy and if I agree, he will send my papers for a hysterectomy at the hospital and he also told me, it’s going to take time because of COVID. Nearly 3 years since I saw the first gynecologists’ and I am still waiting to have the surgery. It took me 4 years to get a diagnosis and 2 years to be put on the list for an hysterectomy and I am still waiting and my surgery might happen this year if I am lucky.<\/p>\n

The past 6 years have been the most difficult time of my life, my mental health has been greatly affected, living with chronic pain on a daily basis is unbearable and not being able to do things I wish I could do with my kids makes me sad, angry and I feel miserable. There has been many many days when all I wanted was to go to sleep and not wake up but my kids and family are my one constant support\/reason and they give me unconditional love that make me want to live for them. My career and work life have been greatly affected, I don’t have the same courage as before, I am unable to do everything I used to be able to do. I function at maybe 50% of my capacity, I used to work 2 to 3 jobs, always having strength to do everything I wanted but now caring for my kids is a real struggle. All I want and need is a life free of pain and I want to believe that after the surgery it will happen, I will see the light at the end of the tunnel.<\/p>\n

What has your experience with treatment for endometriosis been?<\/b>\u00a0<\/span><\/p>\n

When I was first diagnosed, I had to use the Nuvaring and unfortunately it didn’t help and in September, I started on Visanne until I can get my hysterectomy and it does help a bit with the pain but I feel tired, sluggish and continue to have spotting everyday. I also do not have any sexual attraction and relationship since I have been on Visanne.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

I have heavy bleeding that can go up to 10 days, there are months where I have my period twice in the month. I feel exhausted, I have sharp knife- like pain in my abdomen and pelvic area. I also become bloated and look like I am 6 months pregnant.<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[44],"tags":[46,41],"class_list":["post-2721","post","type-post","status-publish","format-standard","hentry","category-temoignages","tag-anglais","tag-saskatchewan-fr"],"yoast_head":"\nJoana - EndoAct<\/title>\n<meta name=\"description\" content=\"I have a career and work full time but over the years I have began to miss more days off work and special events. 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