What are your endometriosis symptoms like? Excruciating lower back, pelvic pain, hip pain, and sore thighs.

What was your journey to diagnosis like? I first had endometriosis symptoms aged 14. I did not get diagnosed until I was 28. I went to many doctors who were dismissive of my pain. My family doctor sent me for an MRI which showed probable endometriosis. I got a referral sent to an endometriosis specialist. I had a 9 month wait until my consultation but was told it could be up to 36 months. I met with the endometriosis specialist. We discussed my symptoms and what hormonal treatment I have used. I had been on Depo Provera for 10 years but it no longer kept symptoms at bay. We agreed a laparoscopy and excision would be the next best step. I then had an 11 month wait for my surgery. The lap and excision confirmed endometriosis.

What was your experience with treatment for endometriosis been? It is hard to find a doctor who knows a lot about endometriosis. Sometimes it feels like the patient knows more. I have been on Depo Provera for 10 years and for the most part it helped my symptoms until 2019 then they got more severe. After surgery it was agreed I would stay on Depo to try and prevent the endometriosis coming back.

How does endometriosis affect your day-to-day life? When I would have a flare up, it had a huge impact on my quality of life. I would be curled up in pain or in the bath, unable to go to work or anything else.

How does endometriosis affect your emotional well-being? Luckily my husband is very understanding. Endometriosis can be very debilitating and can cause a lot of anxiety.

How have you found hope and support in your endometriosis journey? I found really supportive groups on Facebook which was all people who also have endo.