By bringing together our stories, we can help other people in Canada, including elected officials and policy makers, understand the impact of endometriosis across the country.
Everybody’s endometriosis journey is unique and we want to learn what it is like for you to live with this condition.
If you are interested, please Share Your Story. You will be redirected to a secure page where you can learn about how your information will be used and share your story.
The doctor performed a pelvic ultrasound and saw the endometriosis right away ... We decided on a treatment plan and for the first time in years I did not feel I had to beg, argue or push for treatment. I can not express how it felt to finally be listened to, but I cried half the way home - not from pain and frustratioRead more
L’incompréhension et se faire dire: «Je vois que tu as mal, mais je ne vois rien donc je ne peux pas rien faire ». Croire qu’on est devenu folle et que dans le fond, c’est dans notre tête. Devenir solitaire, renfermée et incapable d’avoir des relations intimes avec quelqu’un... c’est ça l’endométriRead more
Living in chronic pain and not being able to parent, socialize, work, or take care of myself at times has been extremely difficult. Some days I thought my husband and son would be better off without me and I was an extreme burden on both of them. Watching from the sidelines and missing out on things with my son was terRead more
Endometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion to help others who are struggling with this disease, bringing someRead more
I have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have a daughter, I may pass down endometriosis to her, which is also terrifying.Read more