By bringing together our stories, we can help other people in Canada, including elected officials and policy makers, understand the impact of endometriosis across the country.
Everybody’s endometriosis journey is unique and we want to learn what it is like for you to live with this condition.
If you are interested, please Share Your Story. You will be redirected to a secure page where you can learn about how your information will be used and share your story.
To receive a diagnosis of Endometriosis took me eight years of persistently advocating for myself, starting from the age of 13. My periods were never normal, and I knew this from talking to my friends about their periods. Between the ages of 13 and 20, I saw six different general practitioners before one of them finallRead more
From age 14 to 21 I must have had weekly visits with my family doctor. He never sent me to any specialists, just tried different birth control pills because he kept telling me “all girls my age have cramps”. When I was 21 my appendix burst, and during the surgery, the general surgeon noted my abdomen had a lot of rRead more
I knew the pain that came with my periods was not normal right off the bat. I would be the only one missing days of school, the only I knew who needed help walking to and from the bathroom just to painfully urinate. At 14 years old, I wouldn't know any better, but my mom did. She knew this wasn't normal. Appointment afRead more
I am constantly tired and in pain everyday, some days I find it hard to do anything, but because I have a child I force myself to get up— I fear my tiredness impacts my ability to do as much with her in a day. Because of where mine is located I have pain sitting in most positions for too long. I also have pain in myRead more
When I am at my greatest pain it feels like my insides are being slowly ripped. I have stabbing pains in my pelvis. It hurts to do everything - go to the bathroom, have sex, walk around, I curl up some nights in the fetal position crying for hours contemplating whether I want to go to the ED again only to likely have mRead more
I live with daily cramping, sometimes manageable, sometimes so bad I can't get out of bed. The pain radiates through my left side and down my back and leg. Gas pain brings me to my knees. I don't remember the last time I went a week without spotting or bleeding. I suffer from chronic fatigue and depressionRead more
The pain and effects on my life triggered depression so in addition to having to deal with bad pain I had to deal with clinical depression. My sleep was affected because of the pain, my sex life, my family and friends life, everything. Since my surgery I feel much better and my depression and sleep have improved too. IRead more
I suffered from painful periods my entire life, and when I was 27 I began to cry during a Pap smear and begged the student doctor to please help me. I was missing work and unable to function 2-3 days of the month because of the pain. Before that I had been told to take birth control, suck it up, pain is normal, use difRead more
Endometriosis is something that I'm constantly having to plan around. I know that when I get my period I'll be bedridden, so I have to decline social events because of it, or constantly try to reschedule things. If I can't cancel or reschedule something, I make sure to take my pain relief with me, and set alarms on myRead more
My family doctor dismissed my pain for 2-3 years saying everyone experiences cramping. I tried to tell him that there was "no way this is normal!". As a teenager I started to need to visit the emergency department for pain management during menstruation. I was diagnosed by an Emergency Physician who sent me to a surgeoRead more