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I really want a baby and the excision doctor says an excision might mean I can get pregnant. I’m so close to 40 and I’m worried about the wait. I mean it’s a pandemic so I have to wait it out, but being on the...

My suffering robs me of entire days. I ache so deep inside it feels as if my bones are broken and the jagged pieces will soon stick out through my skin. My skin crawls and burns as if I have been dragged across a course...

I suppose though, more than anything, I just want this to be recognized or heard and normalized, not a back door conversation, something to hide or be ashamed of. I think just general education of the public would help people to understand what is or...

I struggled with depression during that time, largely related to the lack of sleep. I just couldn't function. I felt like no one was helping me and no one cared about the pain. My family didn't know how to help me and they were scared...

Prior to surgery I would constantly miss work, I couldn't exercise, I quit sports, I cancelled dates and plans with friends weekly. I often would spend entire weekends on my couch unable to move. It was very depressing, and you feel very alone and isolated....

The worst part is grieving your past self. Not knowing if you’ll ever be the person you once were. Not knowing who you are now. It’s hard. It affects your sleep. It affects your relationships. It affects your sexual health and activities. It affects your...

Over the past 7 years, I’ve seen over 20 different doctors and specialists and no one was ever able to properly diagnose or treat me. Myself and my family have spent tens of thousands of dollars in alternative treatments to try and get me well....

When you go to emerg due to the excruciating pain & they send you home it is so discouraging that it causes some depression. ...

Identifying the likely cause of my pain meant that I could speak about my health journey with others more, which has led to further support....

Living in chronic pain and not being able to parent, socialize, work, or take care of myself at times has been extremely difficult. Some days I thought my husband and son would be better off without me and I was an extreme burden on both...

I ended up over time changing my job to something more sedentary to avoid missing work. I used to work as an RN in hospitals, and eventually moved into occupational health nursing, and my role in this type of nursing allowed me to work from...