It is exhausting and can be discouraging; however, I feel that this will change. I can sense a lot of positive action is coming our way, and that everyone has to advocate for themselves and really push for more funding for research to be done,...
En lire plusAt this point in my disease, it affects all aspects of my life. I am not free to be spontaneous, because my diet is so restricted and I need meal plans. Even with planned "safe" meals, I still get digestive pain often times. I'm exhausted...
En lire plusI believe that all general practitioners, psychologists, and clinics should be equipped with a basic level of information to understand that if a uterus-having person is experiencing pain, that is not normal. There is so much of our culture that confirms that period pain is...
En lire plusKnowing you are in so much pain, and not knowing why, really does have an impact on your mental health. It doesn’t help when you get the run around from doctors, being told it’s all in your head and nothings physically wrong. I didn’t sleep...
En lire plusIn recent years the pain has spread and a lot of my pain now comes from my back and legs. My back pain during my period makes it hard to move and is one of the most difficult symptoms to manage, as it’s hard to...
En lire plusWhile there have been steps towards better education, it needs to continue. Canada has world class Healthcare but we need to do better in terms of supporting those with chronic pain. We need to better educate Healthcare. We need better access across the board but...
En lire plusEndometriosis took away most of my high school experience for me. I missed a lot of school because of how pain I was in, and it affected my mental health because nobody understood how badly it hurt. I started believing that I was just being...
En lire plusI have not had a pain-free day in over 6 months. Some days the pelvic pain is so bad that I am laying on the floor and screaming out in agony. In those moments, I have no comprehension of how the pain will pass and...
En lire plusThe fact that took me so long to be diagnosed with endometriosis makes me scared that it will be back any moment, and I will not be able to know before it is too late. Any symptoms that I have, drive me crazy thinking that...
En lire plusI used to think excruciating back, leg, and abdomen pain was just a part of growing up. I remember running out of class in high school to vomit in the bathroom, feeling myself getting dizzier as I thought to myself “I guess girls just have...
En lire plusThe pain can be debilitating. Every day is exhausting. I always plan rest days before and after a "busy day" like grocery shopping. It can be humiliating. I have many times had blood leak through my clothing. It's isolating. Being in bed all the time...
En lire plusAt the age of 14 I was hospitalized for excruciating pain in my right abdomen. I went through lots of tests and a diet change while I was in hospital for 2 weeks. When I was discharged I was told they didn't know what caused...
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