L’incompréhension et se faire dire: «Je vois que tu as mal, mais je ne vois rien donc je ne peux pas rien faire ». Croire qu’on est devenu folle et que dans le fond, c’est dans notre tête. Devenir solitaire, renfermée et incapable d’avoir des...
En lire plusLiving in chronic pain and not being able to parent, socialize, work, or take care of myself at times has been extremely difficult. Some days I thought my husband and son would be better off without me and I was an extreme burden on both...
En lire plusI ended up over time changing my job to something more sedentary to avoid missing work. I used to work as an RN in hospitals, and eventually moved into occupational health nursing, and my role in this type of nursing allowed me to work from...
En lire plusEndometriosis takes everything away from you: your job, your friends, your spouse, your ability to think clearly, because the pain is too intense....
En lire plusEndometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion...
En lire plusI have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have...
En lire plusPlusieurs annulation de sorties entres amis, de fête familiale et de journées de travail manqué dû au douleurs et la fatigue. La culpabilité et l'injustice sont des sentiments fréquemment ressentis. Moins d'énergie dans une journée qu'une autres personnes, on se fatigue plus rapidement....
En lire plusComme je l’ai dit, il faut garder espoir. Rien n’est certain, mais rien n’est incertain également avec cette maladie. Il faut vivre une journée à la fois, ne faites pas trop de projet à long terme, mais plutôt à court terme....
En lire plusHealth care for endometriosis needs to be more common in smaller towns or cities, as in more specialists need to help more patients than just the one or 2 specialists that are available and you have to wait for 6 months to a year to...
En lire plusWhen I had pain, it affected me particularly as a teenager. I missed school a couple of days every month because I couldn't sit upright and would bleed heavily, causing immense discomfort. My family, my doctor, everyone told me this was normal....
En lire plusMy life went from amazing to not being able to do anything once again. I needed to get a lawyer to fight for me for insurance to keep on paying my long term disability. They don’t understand this disease. Finally, I won my case....
En lire plusJ'ai manqué tous les mois le travail et l'école avant de savoir ce qui m'arrivait. Je me suis fait reproché mes absences. J'ai eu beaucoup de difficulté à expliqué à mes employeurs ou professeurs que je n'étais pas malade, juste...
En lire plus