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Témoignages

Être kaput 5 jours exigent de l’organisation. Je suis chanceuse d’avoir un conjoint qui peut palier à mon salaire, parce que je manque le travail à chaque mois pour cause de trop de douleur....

L’incompréhension et se faire dire: «Je vois que tu as mal, mais je ne vois rien donc je ne peux pas rien faire ». Croire qu’on est devenu folle et que dans le fond, c’est dans notre tête. Devenir solitaire, renfermée et incapable d’avoir des...

Living in chronic pain and not being able to parent, socialize, work, or take care of myself at times has been extremely difficult. Some days I thought my husband and son would be better off without me and I was an extreme burden on both...

I ended up over time changing my job to something more sedentary to avoid missing work. I used to work as an RN in hospitals, and eventually moved into occupational health nursing, and my role in this type of nursing allowed me to work from...

Narcotics are all that worked for me and I had zero issues with substance abuse with how I took the medication. Even though I was careful I was treated as if I was seeking drugs for recreation, which has caused a massive distrust in our...

Endometriosis takes everything away from you: your job, your friends, your spouse, your ability to think clearly, because the pain is too intense....

Endometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion...

I have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have...

Plusieurs annulation de sorties entres amis, de fête familiale et de journées de travail manqué dû au douleurs et la fatigue. La culpabilité et l'injustice sont des sentiments fréquemment ressentis. Moins d'énergie dans une journée qu'une autres personnes, on se fatigue plus rapidement....

Comme je l’ai dit, il faut garder espoir. Rien n’est certain, mais rien n’est incertain également avec cette maladie. Il faut vivre une journée à la fois, ne faites pas trop de projet à long terme, mais plutôt à court terme....

Health care for endometriosis needs to be more common in smaller towns or cities, as in more specialists need  to help more patients than just the one or 2 specialists that are available and you have to wait for 6 months to a year to...

When I had pain, it affected me particularly as a teenager. I missed school a couple of days every month because I couldn't sit upright and would bleed heavily, causing immense discomfort. My family, my doctor, everyone told me this was normal....