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Endometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion...

I have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have...

Health care for endometriosis needs to be more common in smaller towns or cities, as in more specialists need  to help more patients than just the one or 2 specialists that are available and you have to wait for 6 months to a year to...

When I had pain, it affected me particularly as a teenager. I missed school a couple of days every month because I couldn't sit upright and would bleed heavily, causing immense discomfort. My family, my doctor, everyone told me this was normal....

My life went from amazing to not being able to do anything once again. I needed to get a lawyer to fight for me for insurance to keep on paying my long term disability. They don’t understand this disease. Finally, I won my case....

I finally made it to an endo specialist and I feel lucky to be here - awaiting some treatment but I can tell you - my anger and fear are still there. I worry about a system that may deny me help again is this...

The amount of work and school days I missed because of endometriosis is unacceptable. And the worst of it all is that people don’t know what endometriosis is, and therefore they don’t believe you or your symptoms. Most of the time, you get judged because...

I am fortunate that I am still able to work with endometriosis. I have had to adapt my exercise regime as running makes my abdomen hurt. Two to three days a month I do stay in bed in pain, which affects my social life. ...

In my 40s I can finally say I feel better after being in perimenopause! But the most negative thing is that I was never been able to have children...

Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn’t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room...

I am constantly fatigued, never know how bad the pain is going to be or for how long. I lose out on so much time when I need to be close to home due to all the symptoms. Other than the online support groups I...