Living with an invisible illness is awful. When you live in pain and everyone tells you that you “look fine” is demoralizing. You are made to feel like it’s all in your head. No one understands, nor do they want to. Women and girls especially...
En lire plusMy life is significantly different since my symptoms began impacting me. Work is much harder, I am more fatigued and work out less. It is also agitating my spinal stenosis....
En lire plusIt took 10 years, I was misdiagnosed multiple times, my tests kept coming back normal but I was not getting pregnant this was a key indicator. The doctors were dismissive. I fought for my right to be heard that's how I was diagnosed...
En lire plusIt's been years I had been experiencing the symptoms, went in/out ER when the pain is intolerable. During my ER visits and series of ultrasounds, there's a visible big cyst in my right ovary, doctors including my old family doctor told me the cyst will...
En lire plusAt thirteen I was told I had suspected endometriosis and took oral contraceptives to control my pain and abnormal bleeding into my twenties. Upon stopping birth control at 24, my periods were erratic, irregular, and heavier than I was used to--similar to how they were...
En lire plusI have had to leave work on very busy days, on days I was in the middle of training. I have missed special occasions because I have been bed ridden. I have had to cancel appointments because I was unsure of whether my upcoming period...
En lire plusI have had debilitating cramps since I was a teen. But in my early 20s I developed sharp pain in my left pelvis. It is ALWAYS there. Sometimes the onset of it getting sharper brings me to my knees or a fetal position. I've been...
En lire plusEndometriosis is a nightmare. It is incredibly difficult to find a doctor who will validate your pain. It's even harder to find an endometriosis expert. It's so hard to find the right treatment that works for your body. It's really, really hard to try to...
En lire plusMy mental health has taken the biggest hit from endometriosis- it feels like pain with no gain- I didn’t do anything to deserve this kind of physical pain. I’ve always wanted a baby and endometriosis feels like some nasty shadow over my life now. Missing...
En lire plusMy first endometriosis flare occurred when I was 34, about 2 years after coming off oral contraceptives. My period came and along with it was a stabbing pain on the right side of my stomach. I though I had appendicitis. I was super nauseous...
En lire plusThe day before I get my period is the worst day. Suddenly, I’ll get the most intense pain in my pelvic area. It’s so bad that I physically can’t move without wanting to scream. I’ll take Naproxen and go into the shower and allow the...
En lire plusEndometriosis is invisible. I'm pretty sure if someone looked at me, they would not be able to tell I am in pain. I hide it well because I don't have a choice. I need to go to school and work, I need to do things...
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