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When I had pain, it affected me particularly as a teenager. I missed school a couple of days every month because I couldn't sit upright and would bleed heavily, causing immense discomfort. My family, my doctor, everyone told me this was normal....

My life went from amazing to not being able to do anything once again. I needed to get a lawyer to fight for me for insurance to keep on paying my long term disability. They don’t understand this disease. Finally, I won my case....

I finally made it to an endo specialist and I feel lucky to be here - awaiting some treatment but I can tell you - my anger and fear are still there. I worry about a system that may deny me help again is this...

The amount of work and school days I missed because of endometriosis is unacceptable. And the worst of it all is that people don’t know what endometriosis is, and therefore they don’t believe you or your symptoms. Most of the time, you get judged because...

I am fortunate that I am still able to work with endometriosis. I have had to adapt my exercise regime as running makes my abdomen hurt. Two to three days a month I do stay in bed in pain, which affects my social life. ...

In my 40s I can finally say I feel better after being in perimenopause! But the most negative thing is that I was never been able to have children...

Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn’t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room...

I am constantly fatigued, never know how bad the pain is going to be or for how long. I lose out on so much time when I need to be close to home due to all the symptoms. Other than the online support groups I...

I missed a lot of high school because I was in so much pain and so nauseous that I couldn't get out of bed. My doctor was really nice but she never suspected anything other than the typical period pain. When I was in my...

I went into the most depressive point of my life. I would cry all day every day in pain. I had panic attacks before my period because I knew that I would feel suicidal from the pain. My mental health went for a toss. I...

I have always been capable of so much from working out to to being a straight A student, and participating in numerous sports teams. This illness has changed everything that was personal to me and has stripped my identity to the point where fertility is...

I have struggled with severe anxiety and panic since my symptoms began. I would dread my period each month because I knew how sick I was going to be. Once the surgeries and invasive tests began it only worsened. I have insomnia and have gone...