I spent so many years sharing my symptoms into what felt like a void. Part of this awareness needs to be a nation-wide action plan to ensure that we are managing the big picture of this disease. Politicians need to get informed and get active....
En lire plusI had to adjust sleep positions. I didn't want to be touched on my right pelvic side. It was something I had to work around constantly. My partner didn't understand and had no empathy. I probably tried mentioning it a few times but he didn't...
En lire plusMood swings prior to my period were crazy, and my period stopped my social life completely, no works outs, no work for two-three days a month, and vacations and sleepovers had to be carefully planned. ...
En lire plusMost fundamentally it has changed my identity and what I imagined this part of my life would be like. It has robbed me of the ability to have children, but has lit a fire in me with regards to my health and career. I am...
En lire plusThis has had a huge impact on my mental health. Every single day I have to pick what I'm going to push through and what I have to give into. When the pain is excruciating, I pretty much shut down and am stuck in bed...
En lire plusI definitely would have chosen excision, but I was not given an option. He operated on me while I was put out for the initial diagnostic laparoscopy. It took 7 years of dismissal and being told everything was in my head just to find out...
En lire plusI think there are huge steps to improve the health care for endo. There is a huge lack of funding that should be put towards research and treatment. This disease affects 1 in 10. That's over 2.6 million women in Canada alone, and a huge...
En lire plusI remember I was told I was in surgery for 5 1/2 hours, because the surgeon couldn't believe how much endo grew in my body. I remember waking up in my hospital room, which was a semi private room to a nurse waking me up...
En lire plusSince endometriosis affects 1 in 10 women, endometriosis identification and care need to be better integrated into medical school training. Primary care providers need to be made more aware of endometriosis symptoms - including atypical presentations - in order to refer patients for timely specialist...
En lire plusI remember waking up one night and being in the worst pain of my life. I couldn’t move, couldn’t breathe, couldn’t cry out for help. I laid there not knowing what to do. Eventually it faded and I fell back asleep. It happened the next...
En lire plusOne minute everything is fine. The next minute pain strikes so hard I lose my vision. Nausea sets in. I am doubled over in pain and don’t know if I can make it home safely. My internal organ functions are compromised are on a cycle...
En lire plusI recently got diagnosed several months ago with both stage 4 endometriosis and adenomyosis. It’s been a nightmare - nobody seems to understand the unbearable pain both emotionally and physically with this chronic disease. To add to this, knowing I cannot have children is killing...
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