It started with stabbing, shooting pain. Vaginal and rectal pain so severe I couldn’t walk because every time I put a foot down the pain would sear through me like a knife. Aching across my abdomen from left to right, from my belly button down...
En lire plusEver since going through gender transition 25 years ago I've been completely open about who I am, because my family, GP, and other people in my life have been accepting. That support is amazing and definitely helped me deal with the discrimination and ignorance I've...
En lire plusIt is exhausting and can be discouraging; however, I feel that this will change. I can sense a lot of positive action is coming our way, and that everyone has to advocate for themselves and really push for more funding for research to be done,...
En lire plusAt this point in my disease, it affects all aspects of my life. I am not free to be spontaneous, because my diet is so restricted and I need meal plans. Even with planned "safe" meals, I still get digestive pain often times. I'm exhausted...
En lire plusI believe that all general practitioners, psychologists, and clinics should be equipped with a basic level of information to understand that if a uterus-having person is experiencing pain, that is not normal. There is so much of our culture that confirms that period pain is...
En lire plusIn recent years the pain has spread and a lot of my pain now comes from my back and legs. My back pain during my period makes it hard to move and is one of the most difficult symptoms to manage, as it’s hard to...
En lire plusWhile there have been steps towards better education, it needs to continue. Canada has world class Healthcare but we need to do better in terms of supporting those with chronic pain. We need to better educate Healthcare. We need better access across the board but...
En lire plusI have not had a pain-free day in over 6 months. Some days the pelvic pain is so bad that I am laying on the floor and screaming out in agony. In those moments, I have no comprehension of how the pain will pass and...
En lire plusThe pain can be debilitating. Every day is exhausting. I always plan rest days before and after a "busy day" like grocery shopping. It can be humiliating. I have many times had blood leak through my clothing. It's isolating. Being in bed all the time...
En lire plusWhen I would have a flare up, it had a huge impact on my quality of life. I would be curled up in pain or in the bath, unable to go to work or anything else. ...
En lire plusI spent so many years sharing my symptoms into what felt like a void. Part of this awareness needs to be a nation-wide action plan to ensure that we are managing the big picture of this disease. Politicians need to get informed and get active....
En lire plusMood swings prior to my period were crazy, and my period stopped my social life completely, no works outs, no work for two-three days a month, and vacations and sleepovers had to be carefully planned. ...
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