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Lower back + pelvic + abdomen pain, sharp stabbing pain in my ovaries, weakness in my legs and occasionally trouble walking, fatigue, trouble breathing through the pain, insomnia, nausea, chills/shaking, pressure in lower abdomen, bloating....

The biggest impact has been in failing to conceive for over 18 months, and going through fertility treatment cycles with no success. Since I've always wanted children, this has been a challenging journey, and one I feared most when receiving my diagnosis. Financially, it is...

It started with stabbing, shooting pain. Vaginal and rectal pain so severe I couldn’t walk because every time I put a foot down the pain would sear through me like a knife. Aching across my abdomen from left to right, from my belly button down...

Ever since going through gender transition 25 years ago I've been completely open about who I am, because my family, GP, and other people in my life have been accepting. That support is amazing and definitely helped me deal with the discrimination and ignorance I've...

It is exhausting and can be discouraging; however, I feel that this will change. I can sense a lot of positive action is coming our way, and that everyone has to advocate for themselves and really push for more funding for research to be done,...

At this point in my disease, it affects all aspects of my life. I am not free to be spontaneous, because my diet is so restricted and I need meal plans. Even with planned "safe" meals, I still get digestive pain often times. I'm exhausted...

I believe that all general practitioners, psychologists, and clinics should be equipped with a basic level of information to understand that if a uterus-having person is experiencing pain, that is not normal. There is so much of our culture that confirms that period pain is...

In recent years the pain has spread and a lot of my pain now comes from my back and legs. My back pain during my period makes it hard to move and is one of the most difficult symptoms to manage, as it’s hard to...

While there have been steps towards better education, it needs to continue. Canada has world class Healthcare but we need to do better in terms of supporting those with chronic pain. We need to better educate Healthcare. We need better access across the board but...

I have not had a pain-free day in over 6 months. Some days the pelvic pain is so bad that I am laying on the floor and screaming out in agony. In those moments, I have no comprehension of how the pain will pass and...

The pain can be debilitating. Every day is exhausting. I always plan rest days before and after a "busy day" like grocery shopping. It can be humiliating. I have many times had blood leak through my clothing. It's isolating. Being in bed all the time...

When I would have a flare up, it had a huge impact on my quality of life. I would be curled up in pain or in the bath, unable to go to work or anything else. ...