I used to think excruciating back, leg, and abdomen pain was just a part of growing up. I remember running out of class in high school to vomit in the bathroom, feeling myself getting dizzier as I thought to myself “I guess girls just have...
The pain can be debilitating. Every day is exhausting. I always plan rest days before and after a "busy day" like grocery shopping. It can be humiliating. I have many times had blood leak through my clothing. It's isolating. Being in bed all the time...
At the age of 14 I was hospitalized for excruciating pain in my right abdomen. I went through lots of tests and a diet change while I was in hospital for 2 weeks. When I was discharged I was told they didn't know what caused...
I've dealt with period pain since day one but was always told it was normal. I lost my left fallopian tube when I was 19 but was incorrectly diagnosed. When I was 22 they suspected endometriosis but I'm considered high risk for surgery so no...
When I would have a flare up, it had a huge impact on my quality of life. I would be curled up in pain or in the bath, unable to go to work or anything else. ...
People should understand that we women are strong. We live with this pain in silence and yet we still put a smile on our faces and get to work. If we say we are in pain, listen to us, please. ...
I haven't had sex in 6 years as I am too scared to face the pain that I know will happen. I avoid relationships pretty much 100%. I try my best to hide the everyday pain but constantly have pain relievers and heat bags. It...
I spent so many years sharing my symptoms into what felt like a void. Part of this awareness needs to be a nation-wide action plan to ensure that we are managing the big picture of this disease. Politicians need to get informed and get active....
I had to adjust sleep positions. I didn't want to be touched on my right pelvic side. It was something I had to work around constantly. My partner didn't understand and had no empathy. I probably tried mentioning it a few times but he didn't...
Mood swings prior to my period were crazy, and my period stopped my social life completely, no works outs, no work for two-three days a month, and vacations and sleepovers had to be carefully planned. ...
Most fundamentally it has changed my identity and what I imagined this part of my life would be like. It has robbed me of the ability to have children, but has lit a fire in me with regards to my health and career. I am...
This has had a huge impact on my mental health. Every single day I have to pick what I'm going to push through and what I have to give into. When the pain is excruciating, I pretty much shut down and am stuck in bed...
