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Stories

21 April 2021

L'endométriose n'est pas un manque volontaire de joie de vivre mais bien un mal incontrôlable, une façon de vivre imposée qui ne fait pas le bonheur. ...

21 April 2021

When you go to emerg due to the excruciating pain & they send you home it is so discouraging that it causes some depression. ...

21 April 2021

Identifying the likely cause of my pain meant that I could speak about my health journey with others more, which has led to further support....

30 March 2021

The doctor performed a pelvic ultrasound and saw the endometriosis right away ...

30 March 2021

Être kaput 5 jours exigent de l’organisation. Je suis chanceuse d’avoir un conjoint qui peut palier à mon salaire, parce que je manque le travail à chaque mois pour cause de trop de douleur....

11 March 2021

L’incompréhension et se faire dire: «Je vois que tu as mal, mais je ne vois rien donc je ne peux pas rien faire ». Croire qu’on est devenu folle et que dans le fond, c’est dans notre tête. Devenir solitaire, renfermée et incapable d’avoir des...

11 March 2021

Living in chronic pain and not being able to parent, socialize, work, or take care of myself at times has been extremely difficult. Some days I thought my husband and son would be better off without me and I was an extreme burden on both...

9 March 2021

I ended up over time changing my job to something more sedentary to avoid missing work. I used to work as an RN in hospitals, and eventually moved into occupational health nursing, and my role in this type of nursing allowed me to work from...

9 March 2021

Narcotics are all that worked for me and I had zero issues with substance abuse with how I took the medication. Even though I was careful I was treated as if I was seeking drugs for recreation, which has caused a massive distrust in our...

5 March 2021

Endometriosis takes everything away from you: your job, your friends, your spouse, your ability to think clearly, because the pain is too intense....

5 March 2021

Endometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion...

4 March 2021

I have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have...