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by
Stories
7 May 2021

I used to be active and confident and now I feel useless and ashamed of my own pain. I can't be out in public long, pain flare ups appear out of nowhere, I'm exhausted from doing the simplest of tasks and constantly irritable from being...

by
Stories
7 May 2021

I have definitely become more and more anxious when that time of month comes near. Every new or worsening symptom has me losing hope. It's very distressing. I feel like my body is slowly "breaking" with more and more malfunctions. I fear how bad things...

by
Stories
7 May 2021

The only way to build this system is to educate more people about it. Women's health really needs to be better addressed in the entire health care system. Women need to be able to advance in this field, and a lot of times the best...

by
Stories
4 May 2021

I really want a baby and the excision doctor says an excision might mean I can get pregnant. I’m so close to 40 and I’m worried about the wait. I mean it’s a pandemic so I have to wait it out, but being on the...

by
Stories
3 May 2021

My suffering robs me of entire days. I ache so deep inside it feels as if my bones are broken and the jagged pieces will soon stick out through my skin. My skin crawls and burns as if I have been dragged across a course...

by
Stories
3 May 2021

I suppose though, more than anything, I just want this to be recognized or heard and normalized, not a back door conversation, something to hide or be ashamed of. I think just general education of the public would help people to understand what is or...

by
Stories
3 May 2021

I struggled with depression during that time, largely related to the lack of sleep. I just couldn't function. I felt like no one was helping me and no one cared about the pain. My family didn't know how to help me and they were scared...

by
Stories
3 May 2021

Prior to surgery I would constantly miss work, I couldn't exercise, I quit sports, I cancelled dates and plans with friends weekly. I often would spend entire weekends on my couch unable to move. It was very depressing, and you feel very alone and isolated....

by
Stories
1 May 2021

The worst part is grieving your past self. Not knowing if you’ll ever be the person you once were. Not knowing who you are now. It’s hard. It affects your sleep. It affects your relationships. It affects your sexual health and activities. It affects your...

by
Stories
29 April 2021

Over the past 7 years, I’ve seen over 20 different doctors and specialists and no one was ever able to properly diagnose or treat me. Myself and my family have spent tens of thousands of dollars in alternative treatments to try and get me well....

by
Stories
21 April 2021

When you go to emerg due to the excruciating pain & they send you home it is so discouraging that it causes some depression. ...

by
Stories
21 April 2021

Identifying the likely cause of my pain meant that I could speak about my health journey with others more, which has led to further support....