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by
Stories
20 August 2021

Ever since going through gender transition 25 years ago I've been completely open about who I am, because my family, GP, and other people in my life have been accepting. That support is amazing and definitely helped me deal with the discrimination and ignorance I've...

by
Stories
20 August 2021

It is exhausting and can be discouraging; however, I feel that this will change. I can sense a lot of positive action is coming our way, and that everyone has to advocate for themselves and really push for more funding for research to be done,...

by
Stories
7 August 2021

At this point in my disease, it affects all aspects of my life. I am not free to be spontaneous, because my diet is so restricted and I need meal plans. Even with planned "safe" meals, I still get digestive pain often times. I'm exhausted...

by
Stories
26 July 2021

I believe that all general practitioners, psychologists, and clinics should be equipped with a basic level of information to understand that if a uterus-having person is experiencing pain, that is not normal. There is so much of our culture that confirms that period pain is...

by
Stories
11 July 2021

 Knowing you are in so much pain, and not knowing why, really does have an impact on your mental health. It doesn’t help when you get the run around from doctors, being told it’s all in your head and nothings physically wrong. I didn’t sleep...

by
Stories
11 July 2021

In recent years the pain has spread and a lot of my pain now comes from my back and legs. My back pain during my period makes it hard to move and is one of the most difficult symptoms to manage, as it’s hard to...

by
Stories
11 July 2021

While there have been steps towards better education, it needs to continue. Canada has world class Healthcare but we need to do better in terms of supporting those with chronic pain. We need to better educate Healthcare. We need better access across the board but...

by
Stories
5 July 2021

Endometriosis took away most of my high school experience for me. I missed a lot of school because of how pain I was in, and it affected my mental health because nobody understood how badly it hurt. I started believing that I was just being...

by
Stories
4 July 2021

I have not had a pain-free day in over 6 months. Some days the pelvic pain is so bad that I am laying on the floor and screaming out in agony. In those moments, I have no comprehension of how the pain will pass and...

by
Stories
4 July 2021

The fact that took me so long to be diagnosed with endometriosis makes me scared that it will be back any moment, and I will not be able to know before it is too late. Any symptoms that I have, drive me crazy thinking that...

by
Stories
2 July 2021

I used to think excruciating back, leg, and abdomen pain was just a part of growing up. I remember running out of class in high school to vomit in the bathroom, feeling myself getting dizzier as I thought to myself “I guess girls just have...

by
Stories
2 July 2021

The pain can be debilitating. Every day is exhausting. I always plan rest days before and after a "busy day" like grocery shopping. It can be humiliating. I have many times had blood leak through my clothing. It's isolating. Being in bed all the time...