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by
Stories
27 December 2021

It all started as painful periods. Then it was a period that went on for 7 months straight. Today I'm 23 and 1.5 years into artificial Menopause. My endo still causes me to live in chronic pain, fatigue, and brain fog from it. I have...

by
Stories
26 December 2021

Living with an invisible illness is awful. When you live in pain and everyone tells you that you “look fine” is demoralizing. You are made to feel like it’s all in your head. No one understands, nor do they want to. Women and girls especially...

by
Stories
26 December 2021

My life is significantly different since my symptoms began impacting me. Work is much harder, I am more fatigued and work out less. It is also agitating my spinal stenosis....

by
Stories
26 December 2021

Most of my days leading up to and during my period were unbearable. Intense inflammation, severe abdominal and back pain that radiated down through my hips and pelvis, all while violently throwing up & collapsing on the bathroom floor. It feel like fire ripping through...

by
Stories
26 December 2021

It took 10 years, I was misdiagnosed multiple times, my tests kept coming back normal but I was not getting pregnant this was a key indicator. The doctors were dismissive. I fought for my right to be heard that's how I was diagnosed...

by
Stories
19 December 2021

It's been years I had been experiencing the symptoms, went in/out ER when the pain is intolerable. During my ER visits and series of ultrasounds, there's a visible big cyst in my right ovary, doctors including my old family doctor told me the cyst will...

by
Stories
19 December 2021

At thirteen I was told I had suspected endometriosis and took oral contraceptives to control my pain and abnormal bleeding into my twenties. Upon stopping birth control at 24, my periods were erratic, irregular, and heavier than I was used to--similar to how they were...

by
Stories
19 December 2021

I have had to leave work on very busy days, on days I was in the middle of training. I have missed special occasions because I have been bed ridden. I have had to cancel appointments because I was unsure of whether my upcoming period...

by
Stories
24 October 2021

I have had debilitating cramps since I was a teen. But in my early 20s I developed sharp pain in my left pelvis. It is ALWAYS there. Sometimes the onset of it getting sharper brings me to my knees or a fetal position. I've been...

by
Stories
24 October 2021

Endometriosis is a nightmare. It is incredibly difficult to find a doctor who will validate your pain. It's even harder to find an endometriosis expert. It's so hard to find the right treatment that works for your body. It's really, really hard to try to...

by
Stories
24 October 2021

My mental health has taken the biggest hit from endometriosis- it feels like pain with no gain- I didn’t do anything to deserve this kind of physical pain. I’ve always wanted a baby and endometriosis feels like some nasty shadow over my life now. Missing...

by
Stories
11 October 2021

My first endometriosis flare occurred when I was 34, about 2 years after coming off oral contraceptives. My period came and along with it was a stabbing pain on the right side of my stomach. I though I had appendicitis. I was super nauseous...