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by
Stories
24 February 2021

I have lost relationships and jobs because people didn't or don't believe how deliberating and crippling this illness does to you, I was mistreated and disrespected a lot. I also developed fibromyalgia after my surgery and this is year 2 of me still learning to...

by
Stories
24 February 2021

If I sit too long it feels as though my ovaries are going to explode, I struggle with shortness of breath, chest pain, nerve pain in my legs amongst other symptoms. I have been waiting for 18 months to see a pain management specialist although...

by
Stories
24 February 2021

The amount of work and school days I missed because of endometriosis is unacceptable. And the worst of it all is that people don’t know what endometriosis is, and therefore they don’t believe you or your symptoms. Most of the time, you get judged because...

by
Stories
31 January 2021

I am fortunate that I am still able to work with endometriosis. I have had to adapt my exercise regime as running makes my abdomen hurt. Two to three days a month I do stay in bed in pain, which affects my social life. ...

by
Stories
25 January 2021

In my 40s I can finally say I feel better after being in perimenopause! But the most negative thing is that I was never been able to have children...

by
Stories
25 January 2021

Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn’t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room...

by
Stories
25 January 2021

It took 17 years for me to get diagnosed with endometriosis. Lots of adhesions - I lost my left fallopian tube. Fighting with infertility. This is a tough and emotional journey. ...

by
Stories
24 January 2021

Many of the pharmaceutical remedies that are used in the treatment of endometriosis are not available to me as I'm a hormone positive breast cancer survivor. We've been treating my endometriosis with pain medication....

by
Stories
24 January 2021

I am constantly fatigued, never know how bad the pain is going to be or for how long. I lose out on so much time when I need to be close to home due to all the symptoms. Other than the online support groups I...

by
Stories
24 January 2021

Since I first got my period they were heavy and long and painful. 10 years ago, as my chronic pelvic pain persisted, I was told that I was being dramatic, that my pain wasn’t real. After countless doctor visits, bloodwork, ultrasounds, colonoscopy and emergency room...

by
Stories
23 January 2021

I missed a lot of high school because I was in so much pain and so nauseous that I couldn't get out of bed. My doctor was really nice but she never suspected anything other than the typical period pain. When I was in my...

by
Stories
23 January 2021

I went into the most depressive point of my life. I would cry all day every day in pain. I had panic attacks before my period because I knew that I would feel suicidal from the pain. My mental health went for a toss. I...