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by
Stories
11 March 2021

Living in chronic pain and not being able to parent, socialize, work, or take care of myself at times has been extremely difficult. Some days I thought my husband and son would be better off without me and I was an extreme burden on both...

by
Stories
9 March 2021

I ended up over time changing my job to something more sedentary to avoid missing work. I used to work as an RN in hospitals, and eventually moved into occupational health nursing, and my role in this type of nursing allowed me to work from...

by
Stories
9 March 2021

Narcotics are all that worked for me and I had zero issues with substance abuse with how I took the medication. Even though I was careful I was treated as if I was seeking drugs for recreation, which has caused a massive distrust in our...

by
Stories
5 March 2021

Endometriosis takes everything away from you: your job, your friends, your spouse, your ability to think clearly, because the pain is too intense....

by
Stories
5 March 2021

Endometriosis may have been the reason I had such difficulty becoming pregnant and the reason for my miscarriages. It stole the ability for me to have a biological child. On the other hand it gave me a powerful internal drive of advocacy and the passion...

by
Stories
4 March 2021

I have done IVF that ended in a miscarriage. Our idea of multiple children or any at all seems like an unattainable dream. It's heartbreaking to think that we may not have a family of our own. However, I'm also afraid that if we have...

by
Stories
1 March 2021

Health care for endometriosis needs to be more common in smaller towns or cities, as in more specialists need  to help more patients than just the one or 2 specialists that are available and you have to wait for 6 months to a year to...

by
Stories
1 March 2021

When I had pain, it affected me particularly as a teenager. I missed school a couple of days every month because I couldn't sit upright and would bleed heavily, causing immense discomfort. My family, my doctor, everyone told me this was normal....

by
Stories
27 February 2021

My life went from amazing to not being able to do anything once again. I needed to get a lawyer to fight for me for insurance to keep on paying my long term disability. They don’t understand this disease. Finally, I won my case....

by
Stories
26 February 2021

I finally made it to an endo specialist and I feel lucky to be here - awaiting some treatment but I can tell you - my anger and fear are still there. I worry about a system that may deny me help again is this...

by
Stories
24 February 2021

On my worst pain days I can't go to work. This is about once a month. I always hope it falls on a weekend so I don't have to call in sick. I can't run or workout several days a month for the pain. I...